Back home in time for tea

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Cody gave me a huge welcome home. The last he’d heard of me was when I was lying in the paddock, calling for help.

‘To have to depend on the goodwill – and awakedness – of others for tea seemed unbearable.’

ADELIA HALLETT’S STORY ABOUT LIFE IN THE PAIN LANE WITH A SMASHED LEG FROM A HORSE-RIDING ACCIDENT (SEE PART 1 , PART 2  , PART 3 and Part 4).

There was only one thing on my mind when I got home from hospital with a broken leg: tea.

And pain, of course, made worse by having to negotiate a hundred metres of gravel driveway and an uneven concrete path, two gates, three steps and a squirming Cocker Spaniel, who thought I must have been still lying in the paddock calling for help as I was when he last saw me, five days ago.

Once inside, I collapsed on the couch and demanded tea. Proper, home-made tea made in my own kitchen and served in my own cup.

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What I wanted, more than anything, was proper tea served in my own cup.

Sandy, who had unloaded my bathroom equipment from the boot of the car while Tom carried my hospital bag and the
mountain of pillows I’d been ferried home on, put the kettle on. We drank tea
together, I took some drugs, and then I fell asleep. And that, basically, describes my
life for a while.

I had had an operation before, so was prepared to feel lousy for a bit after getting
home. I understood that that was part of the contract for fixing me up. We were living
in Auckland when I had my gallbladder removed in 2004. I had the operation, spent a
couple of days in hospital, came home, had meals in bed and afternoon naps on the
couch, and by the weekend I was ready to be bundled into the car and taken to the
world’s best fish-and-chip shop at Miranda (south of Auckland, on the Seabird Coast)
for a celebratory lunch; people with gallstones cannot eat fish and chips, and it had
been a while.

So I was prepared to be patient. A patient patient, if you like. As my first day at home
wore on, Sandy and Tom cooked dinner and fed animals and did the usual end-of- the-
day things. We caught up on news. Watched some television. I did a bit more sleeping
and took more pills.

 

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Bed on the couch; I was about to spend a lot of time here.

When it came time for bed, I issued instructions for making up a bed on the couch. This was partly out of consideration for Sandy (I knew I would be restless and there was no sense in both of us not sleeping), but mainly out of consideration for me; the thought of my leg getting accidentally knocked in the night made me turn white.

Sandy helped me to the bathroom and back, arranged a lamp and a torch within easy reach, along with the pills I would need to take in the middle of the night and a glass of water, and left me reading my book.

What I remember about that night is that it was hot. It was the 29th of November –
practically full-blown summer. Which in the north of New Zealand, where we live,
means hot sticky nights. Sandy left a window open behind me, and at some point in
the night I used a crutch to lever open another one above me.

The pain got bad and I took pills. This wasn’t as easy as it sounds. They were behind my head, on the coffee table beside the couch. Between me and them was the couch arm. Too high, from my prone position, to reach over and pick them up. The options for an able-bodied person would be to prop herself up to reach them, or to hop out of bed and get them. It took me about 10 minutes and a lot of bumps to manoeuvre myself into the position where I could reach them. After that I kept them on the window sill.

The worst thing was going to the toilet alone. Eventually, I had to. Usually if I get up
in the night, I walk to the bathroom without turning on any lights, confident that I can
negotiate our house in the dark.

Image result for crutchesObviously that wasn’t going to happen for a while. I turned the lamp on (more squirming to reach the switch) and sat up on the edge of the couch. My crutches were on the floor below me. I pulled them to me with my good leg, took a deep breath, and heaved myself upwards.

It’s harder to get up on to crutches off something soft like a couch than from, say, a chair and table. Couches and easy chairs seem to be lower, which means you have to push yourself further to get upright, and their soft coverings don’t offer much of a firm foundation to push off from.

But I did it, and crutched my way through the lounge and the kitchen, my torch bobbing awkwardly along with me (where DO you put a torch when both hands are fully occupied with crutches?)

So far so good, but at the stairs I faltered. When I say stairs, I mean steps. Two of them, from the kitchen down to the laundry. Fortunately, they were only about two feet wide, with solid walls on either side, but to me, teetering at the top, they could have been the Grand Canyon.

I was sick with fear. All my hospital-steps- confidence was gone. I wished Sandy or Tom would wake up and help me, but drew the line at deliberately waking them. Somehow, I wobbled my way down and into the bathroom, but it was pretty hairy. By the time my pounding heart and I got back to the couch I was sweating and exhausted, and resolving not to drink any more water so I didn’t have to do it again that night.

The upside of wearing myself out was that I fell asleep. Besides, the drugs were kicking in again, pushing the pain back out of the overwhelming zone and into liveable.

It was dawn when I woke again, which at that time of the year, in this part of the world, is about 6am. Lying on my back, watching warmth seep into the grey light, I realised just how dependent I now was.

Often when I wake up early, especially in summer, I get up quietly, make a cup of tea, and enjoy the special early-day magic. At that time, I was part-way through a degree in geography, and would often curl up on the couch with a pile of textbooks for some undistracted reading.

Sometimes though, I would go out on to the deck and sit on the steps with my tea, and, with Cody the dog beside me, let myself wake up with the world.

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I could make tea, I thought, as long as there was water in the kettle.

In theory, both were still options; you don’t use your leg to read, and the deck was just a few feet from where I was lying. But even if I could reach my textbooks (I couldn’t carry them and crutch), my brain was too foggy for that sort of reading, and after the night-time bathroom performance, going outside on my own (change of levels from the house to the deck, wooden slats slippery with dew) wasn’t an option.

So I concentrated on that most basic of morning rituals, a cup of tea. I had proven I could get to the kitchen, albeit in dodgy fashion. The kettle is on the bench by the stove. The sink – and therefore the water supply – is on another bench that isn’t connected to the bench with the kettle, so being able to boil the jug would depend on whether Sandy had left any water in it. The cups are in the cupboard above the kettle, and the tea is in a caddy beside the kettle. So far so good.

Getting milk from the fridge could be a bit of a problem, but I should be able to reach it with one arm, and if not, I could drink it black if I had to.

But then I ran, metaphorically speaking, smack into a brick wall. How was I going to carry my tea back to the couch with both hands fully involved in the task of driving my crutches? Briefly, I contemplated leaning against the bench to drink it, but really I knew that standing upright for that long wasn’t feasible. My leg would swell and throb, and my head would get dizzy –conditions beyond the miraculous healing powers of tea.

And so I waited. And as I did I was filled with despair more overwhelming than
anything I had so far gone through. I had thought that lying in the paddock unable to
get help was bad. Then I thought that needing help for the most basic functions in life,
like going to the toilet and putting on my own knickers, was bad. But this was a new low.

You might have already guessed – especially if you have read my Tea On The Road blog – that tea plays a big part in my life. I come from a long

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Tea at Mum’s.

line of tea drinkers.  Some of my earliest memories are of listening to my grandparents, aunts, uncles and cousins talking and laughing while they drank tea in the farmhouse kitchen. Whenever something happens, we reach for the teapot. Sandy and I will go out for coffee, and then as soon as we get home will make a cup
tea.

Tea lubricates our lives, making any obstacles surmountable. To have to depend on the goodwill – and awakedness – of others for tea seemed unbearable. Tears slid down my cheeks and I slid into self-pity. How on Earth would I get through this? I would be in a cast for at least six weeks. The ramifications of not being able to function even on a basic level were, I now realised, overwhelming.

*To find out how I got in this position, see my earlier posts, starting with this one.

Free transport for some disabled?

The Green Party is promising free public transport for some disabled people.

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Julie Anne Genter – promising free public transport for some disabled people.

It’s part of a Green Card policy announced this week in support of the party’s goal to get New Zealanders out of cars and into public transport.

Anyone on the Supported Living Payment will be eligible for the free travel. People under the age of 19 will also be able to travel for free, and students will be entitled to free travel in off-peak hours.

The party’s transport spokesperson, Julie Anne Genter, says that the average weekly transport cost for families has risen $40 over the past four years, and now takes up 15 per cent of the average household budget.

The Green Card will cost about $80 million a year and will be funded from the Government’s Land Transport Fund.

Genter says the cost is equal to the cost of building just one kilometre of new motorway.

New Zealand’s general election will be held on September 23.

 

 

The taming of the screw (and other drama)

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‘The rod would strengthen my leg while the bone healed. My leg was now wrapped in a white plaster cast that went all the way around. I looked at it, and tentatively wriggled my toes. They worked. I settled in to my recovery, which, obviously, I would ace’

ADELIA HALLETT”S STORY ABOUT LIFE IN THE PAIN LANE WITH A SMASHED LEG FROM A HORSE-RIDING ACCIDENT (SEE PART 1 , PART 2  AND PART 3).

I was right, I did vomit. Coming out of anaesthetic is the strangest feeling; there is no sense of time having passed. It’s as if a split second after you were being put under you’re awake, but in a different place, and feeling dizzy and sick. Voices are calling your name, and for a bit you don’t know what’s happened, and then it comes back, and you realise that you’ve had the operation and you’re now in the recovery department.

Which, to me, was important, because that’s how I thought of it. There was the accident, the rescue, the repair job, and the recovery. I had got through phases one, two and three, and now I was on the home straight. My leg had been fixed. The surgeons had opened it up and shoved a titanium rod down the inside of my bone. Titanium. I had a mental picture of it blue-black and shiny. The rod would strengthen my leg while the bone healed. My leg was now wrapped in a white plaster cast that went all the way around. I looked at it, and tentatively wriggled my toes. They worked. I settled in to my recovery, which, obviously, I would ace.

There was just one cloud on the horizon. Before I went into the theatre, I had asked someone – an orthopaedic surgeon – about recovery time. I put the six-week, three-month formula I’d heard in accident and emergency to him. He laughed, and told me it would be three months to four months before I was walking, and much longer until I was back to normal. I wanted to think he was wrong, but I had to allow for the possibility that he might be right. Nevertheless, I thought I could still make the annual Maungaturoto Primary School trek in February. Okay, I mightn’t be able to walk properly, but that didn’t mean I couldn’t ride. Life was still good.

Back up the ward, I enjoyed my post-operative status. I was allowed to eat, and enthusiastically filled in the menu card for the next day’s meals. I chatted with my neighbours, comparing details of what had been done to me with what had been done to them, and optimistically told Sandy that I was still hoping to be allowed home on Wednesday (it was Tuesday).  I even got a bit of sleep that night, although did spend quite of lot of it listening to long documentaries on the All Night Programme.

Hopes of going home the next day faded with the morning. I was helpless. Before my operation, all my personal needs had been met in my bed. Post-operatively, I was to get up to go to the toilet and to wash. I was happy about this, but fell at the first hurdle, so to speak, which was getting out of bed. Whole people lift their legs off the bed, swing them to the side and stand up. I realised that the standing bit might be hard, but surely I could get myself out of bed. It turned out I couldn’t. The co-ordination required, not to mention the flexing of leg muscles, wasn’t there. Getting out involved having a nurse lifting my legs off the bed and lowering them to the floor, after she’d helped me to roll on to my side and shuffle to the edge of the bed. Once I was upright and leaning against her and the bed, she rolled a walking frame into my grasp.

walking frameOne of my roommates had been using one of these, and I had watched the technique. Push it forward and walk behind it. Not unlike pushing a child in a pram. The catch was that while I could do the pushing bit, my legs were having trouble with moving in a walking-like fashion. Balance was also a problem. I just couldn’t find it, and realised that without the nurse and the walking frame, I would be in a heap on the floor.

The bathroom was about 20 metres from my bed, across the hall and down a bit. The nurse helped me to the toilet, which had a metal frame over it, and a hand-basin beside it, and left me with a clean towel, gown and underwear. Which was all very well, until I realised that I couldn’t put my knickers on by myself. Think about it. Sit in a chair, and try to do it yourself. Unless you have super-long arms, or are unnaturally flexible, you have to bend your legs in order to able to bring your foot and your underwear into the same space. Add to that the fact that with your lower leg fat with plaster, you have to be able to stretch the leg hole in your undies at the same time that you put your foot through, and you’ve got a problem. I rang the bell and the nurse came and helped me.

Later, a nurse aide took me for my first shower. This time, I managed the walking frameshower a bit better, and was really looking forward to getting properly clean. The shower was a sitting-down affair, with a metal frame similar to the one over the toilet, and a removable nozzle. There was no question, as far as the nurse aide was concerned, of me being able to do it myself yet. She sat me in the chair and helped me to undress. My plaster cast wasn’t allowed to get wet, so she covered it in a huge plastic bag that was taped tightly at the top, turned the water on, and handed me the nozzle. By now I had been “up” for about 10 minutes and was feeling awful. I vomited, and it ran over my body and down the drain.

My companion was gentle and patient. She made clucking sounds and took over washing me, a process which I could have found invasive but instead found empowering. That’s a word I usually hate, but I can’t think of any other. Telling me that my dignity was the most important thing, this lovely, lowly-paid immigrant from Fiji said she had started training as a nurse, but preferred hands-on caring for people to the technical stuff. So, for not much more than the minimum wage, she and her husband work in our region’s largest hospital, helping people like me to get back to normal. As she brushed and plaited my wet hair, I couldn’t help but feel ashamed of the shabby way in which our society treats the people who care for us, while exhalting and rewarding those who cause the most damage. Bankers came to mind. I have nothing against them per se, but even when they’re not causing global financial melt-downs, is making profits from moving commodities and hot-air around the world really as important as looking after us when we are at our most vulnerable? Right then, I thought not, and it’s an opinion I haven’t changed.

My rehab-proper started in the afternoon, with visits from physio and occupational white man and crutchestherapists. The physio measured me for a pair of crutches and demonstrated the correct way in which to use them (you can crutch incorrectly?), while the OT asked me questions about who I lived with (yes, there were two able-bodied people at home to look after me), whether we had stairs (two, down to the bathroom), and about the type of work I did. Being up would be good for me, she said, and arranged for a comfortable chair to be put by my bed. Unfortunately, this back-fired; as the day wore on, my cast started to get tighter, and during one of the frequent nurse-checks of the state of my foot, I revealed that it was a bit numb. I didn’t think it was a big deal, but the complaint got escalated. A more senior nurse appeared and went away, followed by a doctor. Eventually, the consultant came. He was cross to see me sitting up and told me to get back into bed. “Cut the cast,” he told the nurse. To me, he said that my leg was swelling because it wasn’t able to pump blood properly, and that it was really important that I keep it elevated. So back to bed it was. The cast was cut down its length to ease the pressure, and what seemed like half a dozen pillows were propped underneath me, holding my leg in the air. Later, they were replaced by a mean-looking metal contraption.

My personalised crutches (the physio had put layers of soft tape over the hard plastic handles) arrived the next day. Thursday. My fourth day in hospital. I was champing at the bit to get out, so I launched into crutching with enthusiasm. Too much enthusiasm. It’s harder than it looks, especially if you have no sense of balance any more, and are travelling over highly polished hospital floors. My wild swaying scared the bejesus out of the nurses on my first foray, to the bathroom and back. I was put back to bed and told that on no account was I to go crutching on my own just yet.

Overall, though, things were getting better. I could now shower and dress myself (except for the knickers – that remained a problem for months), and was feeling altogether more civilised. I chatted to visitors (mine and other people’s), sent texts near and far, and snoozed like a cat in the afternoon sun.  That night our entire room got an almost-decent night’s sleep, possibly because we had all been there for a few days now and were starting to settle into the hospital’s beat. I had started to feel quite fond of my roommates and realised I would miss them. But that didn’t mean that I wasn’t determined to leave, the next day if possible.

Friday morning saw me on the phone dictating instructions to Sandy, who was putting out my weekly sustainable business magazine in my absence. He had offered to bring my laptop in so I could work, but I demurred. Instead, I begged some paper and a pen from a doctor, sketched out a story in the old way, and fired it down the phone to Sandy, who was taking copy (as we used to call it) at the other end. To be filing a story from my hospital bed didn’t seem in the least bit strange to me; I did, after all, file for the New Zealand Herald four days after my baby was born. It’s what I do. But what was strange was how much writing a short story tired me. I’ve been writing for more than 30 years, and can do it in my sleep, so to speak. Once I have identified the guts of a story, the words flow out of my brain and on to my computer almost without me being aware of them. But this story – about how the company Foodstuffs was using natural refrigeration in some of its supermarkets – made me work.

Later, the physiotherapist returned for my next crutching lesson – stairs. The hospital has a mobile wooden unit with two steps on each side, which it uses for training crutch novices. The technique is quite specific and counter-intuitive; going up – balance on your crutches, move your bad leg up, your good leg up and then the crutches. Going down – crutches, bad leg, good leg. The physio watched me closely as I practised, and eventually ruled that I was fit to be let lose into the world.

I had another session with the occupational therapist as well, planning and practising how I would get in and out of the shower. Our shower is over a bath, so she arranged for Sandy to pick up a long stool that I could slide along until I was under the water. She also provided plastic bags for my cast, and a frame for the toilet.

That just left the medical clearance. Sandy and Tom arrived while I was showering and changing into my going-home clothes, and we sat around together waiting for the final ok. The consultant had told me during his morning rounds that I would be allowed to go, but the Is still needed dotting and the Ts crossing. Eventually, we got the paperwork and I got my crutches ready, only to find myself bundled into a wheelchair. The orthopaedic ward is on the fourth floor of the hospital, and the nurses said that “walking” to the lift and taking it to the ground floor would be too much for me just yet. So I left the hospital in a wheelchair, my crutches slung across my lap. Sandy brought the car to the front door and I slid into the back, where I leaned against the door and draped my legs along the seat. “Take me home,” I said, and they did.

*I would love to hear from you – please send me a message  or leave a comment below with your thoughts, comments or experiences. And if you think it anyone else will find this useful or interesting, please share using the buttons below.

 

Discounts could be on the cards for New Zealand’s disabled

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The SuperGold Card gets discounts for pensioners.

Disabled people would get a SuperGold Card-type discount card under a New Zealand First Government, the party’s leader says.

Winston Peters secured the SuperGold Card for pensioners as part of New Zealand First’s

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Winston Peters – says he admires the hard work of disabled people and wants to help.

confidence and supply agreement supporting the 2005 Labour Government. The card gives people on National Superannuation access to subsidies and discounts on things ranging from transport to household goods.

Now he says he wants to extend the service to 100,000 disabled New Zealanders. He told TVNZ’s Q&A programme today that he has long admired the way in which people with disabilities try to live worthwhile lives despite getting little Government support, and cited the example of a man who had no use of his legs but ran New Zealand’s largest gate-making company.

Peters could well be in a position to deliver on his promise; on current polling, New Zealand First could well hold the balance of power after the September 23 general election.

 

 

Cyclist to champion disability rights

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Paula Tesoriero

World record-breaking Paralympian cyclist Paula Tesoriero is to be New Zealand’s new Disability Rights Commissioner.

Tesoriero, who won gold and broke the women’s 500 metre record at the 2008 Paralympics in Beijing, is also a lawyer.

She is currently a member of the Halberg Disability Sport Foundation and a member of the Artificial Limb Board.

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Paula Tesoriero receives the Order of Merit

The Disability Rights Commissioner is a special officer of the Human Rights Commission, created in 2011.

Tesoriero will take over from the current commissioner, Paul Gibson, at the end of July.

She is currently works for the Statistics Department, and has been the general manager of the Higher Courts with the Ministry of Justice, as well as holding a range of other roles.

 

 

Wasted days and wasted nights

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‘Now I was a pile of wreckage in a place I didn’t want to be, and I was going to have to admit what had happened’

Adelia Hallett continues her story about life in the pain lane with a smashed leg (see part 1 and part 2)

Monday, November 25, 2013: It was a long night, despite being more than half over by the time I got to bed.  Nurses woke me to check my pulse, ask me about my pain levels (eight, on a scale of one to 10, bearing in mind that I’ve given birth and had gallstones), and to administer drugs. The cotton wool given to me to put in my ears when I came

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A hospital bed is not the place I planned on being that day

up from Accident and Emergency helped to block out some of the noise, but was no use against the bright lights and throbbing engines of the emergency helicopter landing on and taking off from the helipad on the roof below the ward windows.  At some point, another patient was moved into the bed opposite me. It took a lot of staff, and, from what I could hear, equipment, to lift her on to the bed, and, judging by her cries, she was in even worse pain than I was.

Inevitably, the tea I’d drunk in accident and emergency caught up with me, and my bladder sent me a message to do something about it. Lesson one in life without the use of one of my legs; even the most rudimentary aspects of looking after myself were now a hurdle. It was getting on for dawn, and the nurses were black shadows buzzing through the grey light. I called one over, told her my problem, and she got me a bedpan. I had never used one before, but needs-must, and I gave it a go. I mightn’t have positioned it properly, or my bladder might have been so full that it exceeded the bedpan’s capacity, but urine seeped up the back of the hospital gown I was wearing and soaked the bed. 

It’s hard to explain how helpless and humiliated I felt. It was worse than lying in the paddock calling for help. There was, at least, a certain nobility to that; I was a fallen warrior. Now, I was a pile of wreckage on a bed in a place I didn’t want to be, and I was going to have to admit what had happened and ask for help. The nurse who answered my bell was kind. Perhaps she could see how close to tears I was. Perhaps she had seen it before. She got me into a clean gown, changed the sheet, and gave me a cloth to wash my face with. I felt better. The ward had gone quiet, there was a lull in helicopter traffic, and I slept.

Life looked brighter when I woke the next time. It was morning proper, and sun was coming in through the windows. The ward was bustling with activity. Jayne, who had been stranded at the hospital with no way to get home and had been given a bed somewhere, sneaked in with her teddy bear hot water bottle under her arm to see how I was and to tell me she was going home. I rang Sandy to say I was still alive, and at 7.28am fired a text off to close family and friends, letting them know what had happened: “In hospital, horse stood on my leg, might operate today”.  I hadn’t realised before how cheering get-well platitudes could be. A gratifying number of texts fired back at me, and my sister and my stepmother (a nurse) rang immediately.

By now breakfast was being served, but I was nil-by-mouth. I took it stoically; I naturally have low blood-sugar levels, and missing morning or afternoon tea, let alone a major meal, is usually a major drama for me. But there was good news to come. Into the morning chaos came the doctors on their rounds. I was prodded and poked and asked about my pain level (down to 7.5), and then the consultant – the big guy – arrived. He told me a lot of things which I didn’t really take in, about my injury and how he planned to treat it, but what I did understand was that he said I could have breakfast, as my operation wouldn’t be performed until late in the afternoon. Yes! The gluey porridge and soggy toast the nurses managed to rustle up for me (when the breakfast orders were done I had still been gloriously injury-free, with no intention of needing a hospital breakfast) were surprisingly palatable, and the tea had the power to right the world’s wrongs. Or at least mine.

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The healing powers of tea should not be underestimated – especially in hospital

Sandy and Tom arrived shortly after breakfast, with a bag of things from home. Sandy was smiling but Tom looked anxious. He patted me a few times, then launched into an explanation about how the radio and headphones he’d brought me worked.  I filled them in as best I could on what the doctor had said, and said I thought I might be home on Wednesday.

After they left I drifted. I didn’t feel like reading, and while I said hello and exchanged brief medical information with my roommates, I didn’t feel like talking either. At some point I heard one of the women telling a visitor that they missed the previous occupant of my bed, who had apparently been quite chatty. “I think this one must be in a lot of pain,” she said.

Shortly after three, a nurse came and told me that I was “going down next” to theatre, and started to prep me. Then she left. Fifteen minutes later she was back with the news that I had been bumped off the surgery list for the day. Something more urgent had come up. I am a great supporter of our creaking public health system, but at that moment I cursed it. Inwardly, of course, but with venom. My head understood the concept of treating the most urgent cases first, but the rest of my body didn’t. It was broken and sore, and crying out for attention. On the up side, I could eat again, and it was only a short wait until dinner at 5pm. Then I settled in for what would turn out to be one of the longest nights of my life. Longer than the previous night, with all its drama, and longer even than the night my son was born. Both of those nights had been filled with events. Things were happening, and I was heading towards resolutions.

This night was just long and lonely. I tried to sleep, but it was elusive. I read for a bit, but my brain wouldn’t concentrate on the story. I listened to the radio. But most of the time I just lay there. A couple of my roommates were also having bad nights, and there were repeated flurries of nurses in and out of the room. I felt sorry for all of them – patients and nurses. The patients needed help, and there weren’t enough nurses to give it to them. My brain wasn’t sharp enough to grasp the details of what was happening, but I did pick up the sense of desperation coming from the patients, and harried compassion from the nurses. They called colleagues from other parts of the ward to help them give my room-mates the attention they needed (nursing is a surprisingly physical job, sometimes requiring three or so to do what needs to be done for a patient). That left a shortage in other parts of the ward. Bells rang. Nurses ran back and forth. I tried to lie quietly, knowing that my needs weren’t as urgent, as compelling, as overwhelming.

But overwhelm me they did. Some time in the night I pressed the bell. The activity around the bed opposite me was slowing. A nurse peeled off and came over to me. I told her that my leg was really sore, and to my surprise I found tears running down my face.

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The morphine pump – my new best friend

She was kind. Motherly, even though she was younger than I was, and (I later found out), didn’t have children. She soothed me. She made the night seem less endless. And most importantly she gave me strong painkillers and told me that I should be using the morphine pump attached to my arm every 10 minutes or so. “You can’t overdose on it,” she said, “it won’t let you. But you need to keep on top of the pain.”

And so another night passed. Once again the morning seemed more cheerful than the night had, and I knew the drill. The doctors appeared again and assured me that I would be operated on that morning. I was changed into a surgical gown, my jewellery was removed (for some reason, the ring I was wearing was taped to my finger), and I was loaded on to a gurney. “Good luck,” my roommates said, and I gave them a thumbs-up.

Down in the theatre suite, the orderly who was pushing me told me that he also worked as an ambulance officer, and had heard my accident called in. People introduced themselves and explained again what they were about to do to me. I told the anaesthetist that I tended to vomit when coming around (he made a note), and I admired the theatre lights, which, from my prone position, looked sculptural and space-age. “We get them at Lighting Direct,” one of the surgeons quipped. And that’s the last thing I remember.

Next post – The Recovery  – posted soon

*If my belief in the curative powers of tea seems naive, think on this: researchers are investigating whether the humble cup of tea could combat killer infections like anthrax and hospital superbugs.

I would love to hear from you – please send me a message  or leave a comment below with your thoughts, comments or experiences. And if you think it anyone else will find this useful or interesting, please share using the buttons below.

 

Disabilities minister lands in hot water

nickywagner
Nicky Wagner

NEW ZEALAND Disabilities Minister Nicky Wagner is being compared to Britain’s Theresa May after tweeting that she’d rather be out sailing than in meetings about disabilities.

UK Prime Minister May’s apparent lack of empathy for the victims of the Grenfell Tower inferno this week has earned her strong criticism that she’s out of touch with the people.

And now New Zealand’s disabilities minister is being accused of a similar lack of empathy, after tweeting on Wednesday: “Busy with Disability meetings in Auckland- rather be out on the harbour!”

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While Wagner’s faux-pas is not on the scale of May’s failure to meet with the survivors of the horrific fire, it does feed the growing perception of a political class so isolated from the everyday problems of many ordinary people that it thinks it’s okay to make comments like that.

The parallel between Wagner and May has not gone unnoticed:

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People who have seen Wagner’s tweet are shocked.

“I suggest you step down then,” tweeted @amykspeaks this morning. “Our communities deserve someone who wants to be there and make a difference.”

And @MariaSherwood said:Got a solution for your boredom with the disability portfolio, there’s an election in September, stand down, More time on water.”

Someone who knew a person at one of Wagner’s meetings that day was similarly horrified.

“How dare you be so flippant,” @nzrosie@nzrosie said. “I know one of those disabled people you were meeting with, and she had been looking forward to it four two weeks.”

While most people can understand the sentiment (we would all rather be out sailing on the harbour than at work), Wagner’s comment shows a huge disregard not only for her job as a minister of the Crown, but also for the nature of her portfolio.

Most people with disabilities have to deal every day with the fact that they can’t do the things they want to do. Not bunking off of work; to be able to go to work every day  – even to attend meetings when the harbour is sparkling outside the window – is a dream of many disabled people. With her comment, Wagner shows that she doesn’t fundamentally grasp the challenges facing the people she is mandated to help.

It’s a point not lost on @FionaMcKenzie9, who said: “I hear you – I hate it when our daughter’s disability gets in the way of our sailing. And biking. And overseas travel. Ugh.”

 

Home is cold and damp for many of our disabled, study shows

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IF YOU’RE disabled, you’re more likely to live in a house that’s cold and damp, new research shows.

And if you’re Maori, Pacific or Asian and disabled, the chances of you living in substandard housing are even higher.

Research published today in the New Zealand Medical Journal uses the New Zealand Government’s 2013 Disability census to examine the housing situation of people with disabilities.

It finds that 16 per cent of the able-bodied population live in houses that are difficult to keep warm, compared to 25 per cent of the disabled population.

The situation is worse for disabled Maori, Pasefika and Asian New Zealanders, with 36 per cent, 37 per cent and 33 per cent respectively living in inadequate housing, compared to 22 per cent of disabled Europeans.

The researchers, Jacqueline McIntosh and Adele Leah from Victoria University in Wellington, say the study has implications for the way in which housing is provided for the country’s ageing population.

“The population is ageing and the incidence of persons with a disability in New Zealand is increasing,” they say in the report.

“This study indicates that large numbers of the disabled population in New Zealand are living in the most deprived areas, in rental housing that is damp and difficult to keep warm. It would appear that the poorest and most vulnerable are living in the worst conditions.”

They say that research into the impact of inadequate housing on health is needed urgently.

The study defines disability as an impairment which has a long-term (six months or longer) limiting effect on a person’s ability to carry out day-to-day activities.

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Hang on, help is on its way

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‘The messages from my brain to my leg muscles just weren’t getting through; it was as if the leg had gone, leaving no forwarding address’

Adelia Hallett continues her story of life in the pain lane with a smashed leg

I didn’t feel or hear the bone crack when my 500kg horse stood on it. For some reason, I’d always assumed that I would, should I ever break a bone. Actually, I felt nothing. For a short time I didn’t even realise I was in trouble. I lay on my back for a minute, catching my breath, then went to roll over so I could get up. Except I couldn’t. My left leg just wouldn’t do what it was told. It wouldn’t do anything. It dawned on me then that it might be broken, but I had no concept of the implications.

brokenpic2For a while I lay on my back, figuring out what to do. Sandy, my husband, has always been worried about me having an accident when I’m on my own, so I had promised him I would always carry my cellphone. And most of the time I did, in the breast pocket of my oilskin riding vest. But that evening was hot, and I’d ridden out in just cotton jodhpurs (close-fitting riding pants) and a tank top. No pocket, no cellphone. The phone was sitting in the car back at the yards, along with my dog.

What I should do, I thought, was crawl to the yards so I could get help. Turning my upper body on to its side, I calculated the distance. No more than 400 metres, over a gentle incline. In my mind I could see myself crawling on my right leg, dragging my left. Our district had been in drought for some weeks, and the ground was hard and dry. The mud that the cattle had pugged up over winter was now baked into little concrete potholes. Progress would be slow, I thought, but I’d seen it done plenty of times in the movies.

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But crawling for help wasn’t a runner, if you’ll pardon the pun. Moving my damaged leg even a centimetre was as impossible as lifting a two-tonne horse float with a tonne of horses inside. It wasn’t a matter of being daunted by pain, or of having a lack of will; it was a physical impossibility. The messages from my brain to my leg muscles just weren’t getting through; it was as if the leg had gone, leaving no forwarding address.

“Okay,” I thought, “help is going to have to come to me,” giving myself a tick in the luck stakes that the accident hadn’t happened further out on the farm. The house my riding buddy Jayne lived in was just beyond the yards. I could almost see it from where I was. A picture of her lying on the couch watching television flashed through my mind; it was possible she wouldn’t hear me over the TV. I started shouting her name. Nothing happened.

It was hard for me even then to get a handle on how much time passed. I wasn’t wearing my watch. The light, which had been low when Kaycee had spooked, disappeared altogether. It got cold. I could no longer see the yards or the fences, and the macrocarpa trees to my right, spooky even in the daytime, became menacing patches of black.

There was no sign of Kaycee. I knew he wouldn’t be able to get into the yards because I had closed the gate when we left. I had just had his reins (my favourite pair) fixed, and hoped that in his blind panic he hadn’t charged to the far side of the paddock, breaking them again on their first outing. That’s when I thought about the trek. I’d told the saddler that I needed the reins back in a hurry because I wanted to use them next weekend.

The glory that is Purerua

The Purerua trek is legendry among my riding friends. Organised by Riding for the Disabled (a charity that uses horse-riding as therapy), it’s held every year on the glorious Purerua Peninsula in the Bay of Islands. At least I’ve heard it’s glorious; I’ve never actually seen it. In previous years when I’d been invited on the trek it had clashed with the exams for the university papers I was doing. But this year it didn’t, and I was looking forward to experiencing for myself what the brochure called: “stunning Northland riding and hospitality” on the “spectacular Pererua Peninsula (numbers strictly limited)”. Only realistically, it looked like I would be missing it this year too.

“Damn,” I thought. “Damn, damn, damn.” Curiously, I didn’t think much beyond that. My only close-up experience of a broken bone to that point had been when my son, Thomas, fell off the skateboard he got for Christmas 2010 and broke his left arm. It was in plaster for a while, but it didn’t really stop him doing anything he wanted to do. When school started he went and sure, he was a bit limited in PE, but he still took part. “If my leg is broken,” I thought, “I must remember to ask for a fibreglass cast like Tom had, so that I can still shower and swim.”

But that was the extent of my plans. Aside from getting out of the paddock, obviously.

There was no chance that I would be there all night. I knew that. Eventually, Sandy would raise the alarm. He’d ring Jayne and she’d go outside and see my car and my horse. Then people with torches would set out to look for me, and would be relieved when they found me so quickly. But for a while at least, Sandy would assume I was having a post-ride natter with Jayne. He’d ring my cellphone or text me to ask when I was coming home, and would be cross when I didn’t reply. It wouldn’t be until it got really late that he’d start to worry. So I kept shouting for help. Not continuously; I didn’t have the breath for that.

Won’t you please, please help me

At some point my leg started to hurt. My riding crop was on the ground beside me, so I put it in my mouth and bit down hard. It helped. Then I called for help again. I knew that my voice was starting to sound desperate. I’d gone from shouting, “Jayne! I need help!” to, “Someone please help me”.

For some reason I think this went on for half an hour, but I don’t really know. Then a voice from a neighbouring house. behind the macrocarpas, shouted, “Help is coming”. It was the lady of the house. I had talked to her over the fence a number of times, and her daughters were at school with my son. “Thank goodness,” I thought, “at last someone knows I’m here.” Some more time passed, and then a male voice – her husband’s – asked who was out there. “It’s me, Adelia,” I said. “I’m in the paddock by your driveway. I think I’ve broken my leg.”

My memory becomes a bit of a blur after that. I now know that it was the younger daughter who first heard me. She went into her sister’s room and asked if she could hear someone shouting for help, and they went to their parents, who wanted to make sure that they were not about to go charging out into a confrontational situation. Once they knew it was me, they came out on to the driveway and said they were calling an ambulance. I remember thinking that that seemed over-the-top. I knew I needed medical attention, but assumed Sandy would drive me in the car.

The electric fence between their driveway and the paddock I was in was bull-strength, so my rescuers had to go down the driveway to the road, in Jayne’s driveway and through the yards to get to me. I asked them to stop and tell Jayne what had happened, and to ask her to ring Sandy. Eventually they clustered around me, asking what had happened and assuring me I’d be alright. Someone – the mother, I think – was on the phone to the ambulance dispatcher, describing how to find me.

A decisive career move

The oldest daughter, a year ahead of Tom at school and a St John’s Ambulance cadet, was the first to get to me. She put her training in practice, laying a blanket over me and taking my hand. I had never really understood before the importance of emotional comfort, but when I think of that night I think of that girl holding my hand. Her mother told me later that the event had quite a big impact on her daughter, demonstrating the difference between training and real-life, and – at that stage, anyway – prompting her to decide to become a professional ambulance officer.

What happened in that hour or so is like scenes flashing past on a magic lantern. And in no particular order. Even at the time, it was hard to keep a timeline straight in my head. The lights of the ambulance had me pinned centre-stage. Voices I knew – Sandy, Tom, Jayne – came out of the darkness. Jayne slipped a hot-water bottle under the blanket. I remember asking if Jayne’s husband was there, and would he mind going and catching Kaycee and putting him away.

And then there were the ambulance officers. Two women, kind, efficient. Drugs were administered. There was a moment of confusion when everyone but me assumed that it was my right leg that was broken. My poor left leg was pushed aside. At least that’s how it seems to me. All I can really remember is searing pain and desperately trying to tell them they had the wrong leg. I must have got through, because a splint was applied to my left leg. That meant getting my riding boot off. Someone assured me that they wouldn’t have to cut it off. I wished that they would.

Fortunately, I’d chosen short jodhpur boots that evening, and not the zipless long boots that require a boot jack and a good hard yank to get off. I was also wearing half-chaps – suede coverings that go over your boot and zip tightly around your calves. The one on my left leg must have been giving it some support, because it hurt when it came off. At some point someone must have taken my riding helmet off. Perhaps I had done it, while I was waiting for help. I can’t remember, but it wasn’t on my head by the time I was in the ambulance.

A Spaniel in the works

I was fretting about Tom. Seeing his mother broken would distress him. I asked Jayne to come with me so that Sandy could stay with Tom. As I was loaded into the ambulance Tom loomed out of the darkness and gave me my cellphone. It’s the kind of thing a teenager thinks of. He’d been to my car to get it, and later he told me that Cody, our cocker spaniel, who I’d left in the car when I went riding, was beside himself. The poor dog must have been able to hear me calling for help and been unable to come.

The ambulance trip was long and painful. We lived about 50 minutes from the nearest hospital with an accident and emergency department. I lost all sense of direction and time. At some point we stopped and someone else got in the ambulance. A paramedic with the authority to administer morphine. Hallelujuh. Needles were put in my arm. There were road-works, bouncy, jolting road-works that went on for ever. I hugged Jayne’s teddy-shaped hot-water bottle.

And then I was in A and E at Whangarei Base Hospital. I knew where I was because I had been there when Tom broke his arm and when Sandy had a heart attack. But I don’t remember arriving at the hospital or being transferred from the ambulance; I just found myself on a bed in a curtained cubicle. Jayne was still there, and new people were examining me. I was x-rayed. My left tibia (the heavy-duty bone in the lower leg, which we non-medical people call the shin bone) was broken. I was x-rayed again, because the duty doctor wanted to make sure there were no other injuries, and a temporary cast was put on. It looked like the boxing you put up when you’re going to pour concrete, cradling my leg but still allowing the medicos to get at it.

It’s official … I fell off

There were questions. How did it happen? (Despite me telling them that I was on the ground and got knocked over, it went into the admission forms that I fell off my horse, and that’s become the official story). On a scale of one to ten, how much does it hurt? (Eight-point-five, maybe nine. I said that as someone who had given birth and had gall stones, and knew what real pain was). Was I hungry? (Yes. Starving. But what I really wanted was a cup of tea).

The doctor said lots of things but what I took in was that I would have an operation the next day. That meant that I couldn’t eat anything after midnight. A nurse said she would try and find me something to eat. At five to 12 she reappeared with two cheese sandwiches and a cup of tea. I was absurdly grateful.

The other thing I remember is that I asked someone how long I would be laid up for. Six weeks to get back on my feet, and three months until I was back to normal. It seems ridiculous now, knowing what I now know, but I believed it. I started calculating. Six weeks would take us to mid-January, and three months to the end of February. Even with a margin of error, I would be riding again by the time the hunt season began in mid-March. I could live with that.

In the early hours of the morning I was taken upstairs to the orthopaedics ward and put into a bed, where, with the help of some cotton wool to block out the snoring coming from another bed, I drifted into a drug-hazed sleep.

Next post – They can rebuild me 

*According to the ambulance report, the accident happened at 8.30pm, but that would have been based on my guess about how long I had been lying in the paddock. The report does, however, contain some facts; the ambulance was dispatched at 8.57pm and arrived at 9.13pm. The officers found me lying on my side in a paddock. My airways were clear, I was conscious and alert, and my eyes were “pert”. I had good colour, and feeling in my left leg and foot (my right leg was fine, they noted). At 9.20 I was given Methoxyflucane, which, according to Wikipedia, is a “halogenated ether used to relieve pain, and is inhaled”. Five minutes later I was given paracetamol. The ambulance left at 9.45. At 9.55 I was given more Methoxyflucane, and at 10.14 I got my first dose of morphine. Three more were administered, at 10.20, 10.50 and 10.58, and at 10.59 we arrived at the hospital.

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Twelve things I would tell my broken self

Hindsight is a wonderful thing. Here are 12 things I wish someone had told me when I first started on the long and rocky road to recovering from a broken leg.

  1. This is going to take longer than you think. Don’t make plans.
  2. Accept all the help you’re offered, including home-help, and don’t be afraid to ask for more.
  3. Those tables they have in hospital, the sort with wheels that go under the bed and a tray that goes over it, are a must. Don’t wait months to ask for one.
  4. Fancy ergonomic crutches are so much more comfortable to use than the straight ones.
  5. Don’t get left alone without a phone, water, drugs, something to eat and a Thermos all within easy reach. And the remote control for the TV.
  6. Having a shower and getting dressed is enough to do in one day.
  7. Practical, comfortable clothes with lots of pockets (so you can carry things while using crutches) are going to be the go for a while. And don’t even think about wearing heels; they are years down the track.
  8. Healing takes a lot of energy. Sleep is the best medicine.
  9. Determination will not get you through this. In fact, it will be counter-productive. You need to go with what’s happening, however frustrating and unpalatable it might be.
  10. When the surgeon offers you the chance to have the rod taken out of your leg, say yes. Everything will get so much better after that.
  11. You are not in control of your life just now. Accept it.
  12. Remember what’s really important (family). Everything else you might have to let go.

I would love to hear from you – please send me a message  or leave a comment below with your thoughts, comments or experiences. And if you thing anyone else will find this useful or interesting, please share using the buttons below.